Risks after double mastectomy

After a double mastectomy there are risks that you have to watch out for even after your healing is complete and you are back to “normal” or your “new normal” is what I call it. These risks are something that were told to me but very nonchalantly…

With removing breast tissue and specifically lymph nodes there is a high risk of lymphedema, for the rest of your life! Kind of crazy. What is lymphedema? Lymphedema is a buildup of fluid in the soft tissues of the body. It can happen after lymph nodes are removed during surgery or after radiation therapy. Lymph fluid usually moves freely throughout your body. But when lymph nodes have been removed, or the flow of lymph fluid is blocked by scar tissue, fluid can build up. This can cause swelling in your arm and nearby areas. Especially in the side that the lymph nodes were removed.

What can you do to prevent lymphedema?

1. No high pressure or restraining blood flow to the extremity, so no blood pressure, IVs, blood draw etc…

2. Do not expose your arm to very hot or very cold temperatures

3. Continue to exercise, drink plenty of water and eat a healthy diet to prevent inflammation

Once you get lymphedema it is hard to treat and completely get rid of and it tends to come back once you get it. So if you have had a double mastectomy with lymph nodes removed- keep an eye out for red, swollen arms or hands, tightness in the armpits, arm or hands and increased pain or fever.

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